On 7 March, the members of the European Working Group of People with Dementia (EWGPWD) – who are part of the ADIS Advisory Board – attended an online consultation in the context of the ADIS project. The consultation was facilitated by Soraya Moradi-Bachiller (Project Officer), Dianne Gove (Director for Projects), Ana Diaz (Project Officer), and Daphné Lamirel (Project Officer).
During the meeting, Soraya started by giving a short overview of the ADIS project. The members of the EWGPWD were then asked to provide their views on the value of people knowing that they have (or may develop) Alzheimer’s disease (AD) in the different stages of the disease continuum (i.e. at-risk, Mild Cognitive Impairment (MCI) due to AD and AD dementia) for scientific research, for society and for the individual. They were also asked whether this value would be the same if after several years people were still at the same stage of AD. Participants also provided their perspectives on the value of people knowing a diagnosis of AD without being informed about the disease stage they are in (i.e. MCI due to AD or AD dementia).
The discussions were lively and all participants provided very insightful contributions to the consultation.
