In November 2023, at the first event of its kind, six European research projects joined together in a series of consultations focusing on Public Involvement in dementia and brain health research, organised by Alzheimer Europe. At this event, 44 members of the Advisory Boards of six EU-funded projects (EU-FINGERS, LETHE, Multi-MeMo, eBRAIN-Health, EPND and ADIS), all of which are working on different aspects of brain health and dementia research, collaborated in a series of multi-project consultations. Members of these Advisory Boards, which are convened and moderated by Public Involvement leads at Alzheimer Europe, are people at a higher risk of, or living with, dementia, carers and supporters of people with dementia and other lay people with an interest in brain health and dementia prevention.
During this collaborative event, Alzheimer Europe took the opportunity to produce a series of video interviews. These interviews are with members of the Advisory Board members of the six EU projects attending the meeting, researchers working on the project, the FNR programme manager and members of the European Working Group of People with Dementia (EWGPWD). The EWGPWD is also involved in a number of projects through its work with Alzheimer Europe and some of them are also members of the Advisory Boards of these projects. They all shared their experiences working on the various projects and the vital contributions of the Advisory Boards ensuring that research accurately reflects the preferences, needs and priorities of members of the public and their perspectives in different aspects of research processes and outputs/results.
