On 24 January, Ricard, Pilar, Cristina, Kina and García (members of the ADIS advisory board (ADIS-AB)), and their supporters, met online for their first consultation in the context of Public Involvement activities of the ADIS project. The consultation was hosted by Alzheimer Europe (AE), facilitated by Soraya Moradi-Bachiller (AE Project Officer), and also attended by the neuropsychologist Andrea del Val Guardiola (on behalf of the Fundació Clínic per a la Recerca Biomèdica), Jesús Rodrigo (CEO of the Confederación Española de Alzheimer) and Ana Diaz (AE Project Officer).
The meeting focused on the topic of terminology, tone and content of the ADIS project information sheet and informed consent form. Prior to the meeting, the members of the ADIS-AB, who will provide their perspectives, priorities and concerns on various topics around the ADIS project, were provided with the information sheet and informed consent form of the ADIS project. During the meeting, members discussed these and were asked to provide feedback on these two documents.
All the members of the ADIS-AB participated in an active and lively manner in the consultation, and provided valuable comments. The feedback gathered during the meeting will help AE to develop best practice recommendations for researchers on how to design information sheets and informed consent forms for research studies on Alzheimer’s disease.
More information about each member of the ADIS-AB can be found here: https://farmaciafeliu.com/adis-project/advisory-board/
